LGS Foundation Hosts 5th International Conference on Lennox-Gastaut Syndrome

The LGS Foundation will be hosting their fifth international conference on Lennox-Gastaut syndrome (LGS) this weekend at the World Center Marriott in Orlando, FL. This comprehensive educational conference will bring together nearly 325 LGS families from around the world together with epilepsy professionals and industry representatives.  Three days of educational sessions will provide attendees with clinical and research updates on Lennox-Gastaut syndrome, a rare and severe form of epilepsy, along with information on emerging therapies, special needs resources, and topics related to quality of life. The conference also offers families and caregivers a number of breakout sessions that will enable them to exchange information, resources and support.

“This conference is very special to all of us who have a loved one affected by Lennox-Gastaut Syndrome,” says Executive Director Christina SanInocencio. “Attendance to each of our conferences since 2011 has increased steadily by 30%. It is clear by the growth of this meeting and by the feedback we receive from attendees that this event is truly a special and important one that many attendees look forward to.”

The LGS Foundation hosts their conference every 18 months in the United States. It changes regions each time so that families from all over the United States and abroad have the opportunity to attend.

Jennifer Griffin, board member of the LGSF, says “Every time I attend this conference I come home motivated and hopeful for the future because I feel like the research in LGS is moving at warp speed.” Melanie Huntley, PhD, president of the LGS Foundation adds, “It’s incredible to see how much progress has been made in research for LGS, even since our last conference only 18 months ago. Families become increasingly hopeful as they learn about research advances, particularly related to understanding the causes associated with LGS. The strength in the community is remarkable and every time we get together for this conference, we leave with even more hope for a better future for LGS.”

To learn more about the LGS Foundation and the LGSF conference, visit www.lgsfoundation.org.

Source: LGS Foundation


Tags: epilepsy, Lennox-Gastaut Syndrome, LGS, seizures